Wow, so long.  Our beautiful girl is almost five years old now.  She is truly the most wonderful daughter we could ever have, so energetic, smart and completely the light of our lives.  We're so grateful to have her in our lives.  Monica is now at big school and loves learning all about the world. We recently bought a Piano and we are encouraging Monica musically. Monica really loves drawing, writing and is starting to read too. 

  

Monica - 17 Weeks Old

We can't believe our little baby girl is now 4 months old.  If she was born on her due date she would now be 6 weeks old.  She is doing incredibly well and the last couple of days she has started sleeping through from midnight until around 7am.   She certainly loves her food and is now 10lbs 13oz.  Amazingly she has already started to tell us when she is hungry in sign language, although she shouldn't be doing that until at least 6 months old (corrected age).  She now smiles a lot, has a little giggle and really loves play time.  Latest follow up at the hospital went really well and she passed all their tests with flying colours :-)

Monica at 17 weeks old (6 weeks corrected age)

Update: 03 March 2009

Monica is continuing to grow; she certainly loves her milk.  She is now 7lbs 6oz.  She had her first "jabs" today so wasn't in the best of spirits to start with but she is coping well. It's almost her due date (11th March 2009), so we'll probably have to celebrate her other birthday :-)

Monica has now had quite a few visitors and although she is more awake and alert than ever, she still seems to favour visitor time for major sleeps hence very few people ever seem to get to see her awake.  Her nan and grandad only heard her cry for the first time two days ago (yet she is nearly 2 and a 1/2 months old now!!).  She is such a happy little baby and smiles a lot and has some wonderful expressions.

Monica having her temperature taken after her Jabs.

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Monica is Home at last

After Marie being on complete bed rest for 13 weeks and then our precious little baby girl spending the first 8 weeks of her life in hospital (initially graduating from the high dependancy unit at the Queen Charlotte and Chelsea hospital to low dependancy, the Isolation ward and then finally special care baby unit at the Lister hospital), to say that we are absolutely over the moon to have been able to finally bring our little girl home would be quite some understatement. 

Monica took the cold weather in her stride and slept the whole way home, although to be fair she did have a full tummy for the journey.

Marie and I would just like to thank everybody for all your kind words, emails, cards, presents & visits etc.  It has made all the difference to us and has made the journey a lot easier :-)

Monica getting read to leave the hospital in her "snow" suit.

Monica in her car seat ready to go home.

 

Monica outside for the first time ever (the first time didn't really count as she was in an incubator then :-)

Our little baby girl asleep in the car.

Monica fast asleep in her new moses basket at home :-)

Update: 21st Feb 2009 - First Week At Home.

The first week at home has flown by and Monica is doing amazingly.  It's incredible how strong she is getting, just a couple of weeks ago she couldn't even turn her head and now she moves her head from side to side all the time.

The poor little thing had to go for another ROP Eye test yesterday which was incredibly unpleasant for her (not to mention for Marie and I).  Retinas in babies aren't fully developed until week 36 hence the test to ensure that they have developed without issue.  I had to hold Monica down while the doctor did what I can only describe as some very heartbreaking things to her eyes.  Luckily she passed with flying colours and so has now been fully discharged and never has to have that test repeated again.

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Monica is coming home

Great news, if all goes well, Monica is coming home this Friday :-)  Our little star has made great progress over the past couple of weeks she passed her hearing test with flying colours and she now no longer needs the NG tube or the vital signs monitor as her desaturations have pretty much stopped.  It's great to see her without any tubes or wires.  She is now on demand feeding and is still 6lb 1 oz and she actually now looks like a normal healthy baby rather than a premature baby :-)

So.... hopefully I'll be posting some photos up of Monica leaving the hospital and coming home :-)

Monica just before the NG tube was removed.


Monica the night before she is due to come home.

Continue to "Monica is Home"

Monica - Week 7

We can't believe how fast the time is flying and how quickly Monica is progressing, but we are still cautious in getting to each and every milestone.  One of the doctors actually said "why is this one still here?" to the other staff when referring to Monica which is cautiously encouraging.  The nurses pointed out that Monica was still being tube fed until "normal" feeding had been properly established.  We'll very soon be graduating from the Pampers Micro nappies to the next size up!!

Of course as with these things there are always ups and downs.  Monica had quite a bad day today (Tuesday 3rd Feb) which started with a routine eye test for ROP (Retinopathy of prematurity).  After the test (which we are informed is particularly nasty and stressful), Monica was desaturating all day and had another bradycardia episode when mum was trying to feed her.  She was quite clearly very distressed but we're hoping that she will be fine again by the morning.  She looks at you with such a sad face when she is not happy.  Unfortunately we're told that protocol dictates that she has to have a repeat of the ROP test in 2 weeks time :-(

One of the first reactions of the doctors to Monica's desaturations was to recommend more blood tests but Marie managed to stall them on that and requested that they wait until tomorrow to see if Monica improves overnight.  Unfortunately though, Monica is now back on Oxygen with tubes running to her nose.  Mum said she exhibited quite a level of annoyance at this and promptly tried to rip both the oxygen and feeding tubes off and very nearly succeeded.  She had to have a pair of mittens on for her own sake although I'm not sure she understands where her beautiful hands have gone as she did look a little puzzled at times.  On the plus side though, today's events didn't seem to put her off her milk too much :-) (although it did take a lot longer to feed her than normal).

Update: We're told the results of the ROP test are fine but Monica will still need the next test in 2 weeks time.  Monica had a much much much better day today (Wed 4th Feb) and only had a few fleeting desaturations.  She has been off the oxygen since about 5pm but still has the oxygen tubes just incase.  We arrived in the hospital to find the doctors doing an ultrasound brain scan which was a bit scary but we were informed that it was routine and then at the end we were told that everything was ok.  Monica was weighed overnight and has put on the most weight she has ever put on....  She is up by 225grams to 2.645Kg which is 5 lb 13 oz !!!! Monica's hemoglobin levels are also now up to a more acceptible value since the blood transfusion.  So a great day all round :-)

Monica is starting to look more and more like a full term baby, albeit a bit smaller all round.

Monica sunbathing blissfully oblivious to the snow and chaos outside.  We had to stay in a hotel nearby the hospital to ensure the little ones milk supply route was kept open.

Monica after her ROP Eye test (at 35 weeks gestation) and laying on her special "head shaping" pillow.  We're not quite sure why they ruffled her hair up.

Continue to "Monica is coming home"

Monica - Week 6

Monica has been doing exceptionally well this week.  She now weighs 2.420 Kg (5 lbs 5oz !!!!) which isn't far away from being double her birth weight.  Some of the nurses even joke about her having a double chin and one of them that hadn't seen her since she was admitted from the Queen Charlotte's came over and said "Wow, Monica, you are a little fatty". We know that we are really lucky that Monica is able to tolerate her feeding regime although we are constantly amazed at how the doctors keep putting her 3 hourly quantity up (currently 54ml) every time her weight increases and how she takes it in her stride.  I made the mistake of letting the milk run out half way through a feed and was chastised with a cry that I knew could only mean "do not even think about stopping my food". Sure enough no sooner had the milk-into-tummy syphoning resumed than the look of contentment and calm returned.

Monica relaxing after her milk.

Monica catching another cat nap. Mum was actually very annoyed to return to find Monica had slipped under the blanket :-(

Continue to Week 7

Monica - Week 5

Monica is continuing to do really well... especially in the eating department.  She how weighs in at a huge 2.065Kg (4 lbs 8 oz)!! She has overtaken many of the other little ones in the Special Care Baby Unit (SCBU), and once she is able to feed without the tube we think they will start talking about letting her come home.  Although Monica now feels quite big to Marie and I (and certainly a lot less fragile), her photos do still make her look much bigger than she is in real life.

After Monica was moved to a cot she got a bit of a cold so had the sniffles for a few days.  As a result she was desaturating and having quite a few bradycardic episodes.  She had to have an oxygen tube connected and go onto a very small amount of oxygen on and off for 24 hours.  A couple of days later though and it is clear she is feeling much better.... she is certainly much more alert and is completely off the oxygen (apart from the odd episode during feeding).  She is opening her eyes much more frequently and smiling a lot more.  She is back to just the NG (Nasogastric) Tube for feeding, which is just as well as she has now learnt to move her head from side to side (after a lot of huffing and puffing and psyching herself up for it it would seem) so she'll get a lot less upset when doing so.  She has also learnt to grab and hold a finger when it is waved in front of her, which I'm mightily impressed with (given that she shouldn't even be born yet let alone opening her eyes and having decent coordination)!!  I'd have to say she has also developed a great sense of humour, especially during nappy changes, but only when her dad is doing the honours!

Monica had the oxygen tubes attached for around 24 hours.  She didn't much care for them and so tried to remove them a number of times (and very nearly succeeded). 

Monica on Day 35 with her delighted mummy.

Monica cuddling mum on Day 36.

Monica has been weighed again and now weights 2.22Kg which is 4 lbs and 14 oz !! 

Monica just loves showing her hands off and gets really stressed when the nurses try to put her hands under the blankets.

A very proud dad with a sleeping Monica (after having another 50ml of milk).

Continue to Week 6

Monica - Week 4

Monica had a few visitors this week :-)

Monica reaching out to Auntie Jaq (who went as white as a sheet when Monica desaturated.  Luckily for my sister there was oxygen nearby incase she needed it) ;-)

Auntie Linda and Uncle Lee visited but Lee declined to assist in a nappy change.

Monica was on very good behaviour for Nan and Grandads visit.

Continue to Week 5

Monica - Day 29

Monica is doing well after her blood transfusion.  She has only had one desaturation since and has been moved out of the incubator and into a cot.  The Diuretics to counter too much fluid from the blood transfusion certainly made for interesting nappy change times!!

Monica's new home and a smashing hat.

Monica and mum having some cuddle time. She loves looking up and listening to her mummy.

Monica with the hiccups.

Monica with the hiccups still.

Monica putting her fists up at daddy.  She must be sick of the camera already.

Continue to Week 4